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Hospice Care and Information Resources |
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Children and Grief - Online resorces Kinderstart The Children's Room Grief and Pre-Teens Barr-Harris Children's Grief Center Children's grief.net - Resources and helpful information Good
Grief Rituals: Tools for Healing - Childs-Gowell,
The Spiritual Life of Children - Coles, Robert Children Mourning: Mourning Children- Doka, Kenneth J. The Grieving Child: A Parent's Guide - Fitzgerald, Helen Helping Groups of Children When a Friend Dies - Fox, S. Part of Me Died, Too: Stories of Creative Survival Among Bereaved Children and Teeneagers - Fry, Virginia Lynn A Child's Parent Dies - Furman, Erma Life and Loss: A Guide to Helping Grieiving Children - Goldman, Linda They Need to Know: How to Teach Children About Death - Gordon, Audrey and Klass, D. Talking About Death: A Dialogue Between Parent and Child - Grollman, Earl A. Bereaved Children and Teens - Grollman, Earl A. Helping Children Grieve: When Someone They Love Dies - Huntley, Theresa Helping Children Cope with Separation and Loss - Jarratt, Claudia Jewett How It Feels When a Parent Dies - Krementz, Jill Helping Children Cope with the Loss of a Loved One: A Guide for Grownups - Kroen, William C. On Children and Death - Kubler-Ross, Elizabeth Learning to Say Goodbye: When a Child's Parent Dies - LeShan, Eda No Time for Goodbyes: Coping with Sorrow, Anger and Injustice after a Tragic Death - Lord, Janice Harris Beyond Sympathy: How to Help Another Through Injury, Illness or Loss - Lord, Janice Harris Gentle Closings: How to Say Goodbye to Someone You Love - Menten, Ted How Do We Tell the Children? Helping Children Understand and Cope When Someone Dies - Schaefer, D. & Lyons, C. About Dying: An Open Family Book for Parents and Children Together - Stein, Sara Bonnett Talking with Children About Loss: Words, Strategieis and Wisdom to Help Children Cope with Death, Divorce and other Difficult Times - Trozzi, Maria Helping Children Cope with Grief - Wolfelt, A. Children and Grief: When a Parent Dies - Worden, J. William Homemade Books to Help Kids Cop - Ziegler, Robert G. http://www.bereavedfamilies.net Grief and Loss Grief-Recovery Center Grow Bereavement.org The Center for Loss Death-dying.com Griefnet.org AARP Centering Compassionbooks Bereavement Magazine Death due to suicide Surviving suicide Loss of a child Compassionate Friends Counseling St. Louis Adult Sibling Grief Widowers and widows Widownet.org AARP Young widows and widowers Young widows and widowers
Last Acts campaign - to improve end-of-life care Promoting Excellence - Innovative models in end-of-life care
Palliative Care & Pain Management American Board of Palliative Carehttp://www.abhpm.org The
Center for the Advancement of Palliative Care
Dying well : The prospect for growth at the end of life - Byock, I. Final Gifts - Callanan, M. and Kelley, P. Fading
Away: The Experience of Transition in Families with
Terminal Illness - Davies, B. et al. Transcending Loss: Understanding
the Lifelong Impact of Grief and How to Make It Meaningful - Rando, T. A. Surviving
Grief and Learning to Live Again - Stoddard, S. Air Crash Support Network - organization established to aid and facilitate the grieving process of people who have been affected by or involved in an air crash. ALS Association National Office - The Amyotrophic Lateral Sclerosis (ALS) Association is dedicated to the fight against ALS, commonly referred to as Lou Gehrig's disease. The Association is a national information resource on ALS, funding research and providing referrals for counseling, training and support. Alzheimer's Association Americans for Better Care of the Dying American Brain Tumor Association American Cancer Society American Geriatrics Society's Foundation for Health in Aging (FHA) American Heart Association American Liver Foundation American Lung Association American Parkinson Disease Association, Inc. American Pain Foundation American Trauma Society Association for Death Education and Counseling Candlelighters Childhood Cancer Foundation Children's Hospice International The Compassionate Friends, Inc. - The Compassionate Friends is a self-help organization whose purpose is to offer friendship and understanding to parents and siblings following the death of a child. They have 580 chapters nationwide which provide monthly meetings, phone contacts, lending libraries and a local newsletter. The national organization provides newsletters, distributes grief-related materials, and answers requests for referrals and information. Cystic Fibrosis Foundation The Dougy Center - The Dougy Center, The National Center for Grieving Children and Families, provides support groups for grieving children that are age specific (3-5, 6-12, teens) and loss specific (parent death, sibling death, survivors of homicide/violent death, survivors of suicide). The Center is in the process of publishing a series of guidebooks based on what they've learned from the children they have served. Titles include Helping Children Cope With Death and Helping Teens Cope With Death. Additional services that include national trainings, consultations to schools and organizations, crisis-line information, and referrals. Final Thoughts - web resource for estate and end of life planning. Gay Men's Health Crisis - Gay Men's Health Crisis is the nations oldest and largest AIDS service organization and is a model for AIDS care, education, and advocacy world wide. GMHC offers a multitude of support services, including legal assistance, nutritional counseling, family services and crisis intervention. Gilda's Club - Gilda's Club is a psychosocial support community for people with cancer, their families and friends, offering support, meditation and networking groups, pot-luck suppers, and social events. Everything is entirely free. There are special programs for children whose parents or family members have cancer or who have cancer themselves. Have ten affiliates across the United States, Canada and London. In Loving Memory - Mutual support, friendship, and help for parents who have lost their only child or all of their children. In Loving Memory hosts a national conference every two years for bereaved parents as well as the professionals who work with them. Innovations in End-of-Life Care - This bimonthly, online journal features peer-reviewed promising practices in end-of-life care. Each innovation is selected because it holds promise for enhancing the comfort and dignity of dying persons and their families. Thematic issues spotlight improvements in institutional practice and policies, uncover the process behind these efforts, and offer international perspectives on the topic. International Association for Hospice and Palliative Care International Cemetery and Funeral Association Last Acts National Program Office - The goal of Last Acts is to achieve the following: greater awareness of problems in the care of critically ill and dying Americans; greater recognition--by various organizations and groups--of their responsibility to participate in developing and implementing solutions; and increased collaborative activities, information-sharing, and continued engagement in discussion of end-of-life issues. The Leukemia & Lymphoma Society Mercy Medical Airlift - The Angel Flight America national system of free or low-cost, long-distance medical air travel. National Association of People with AIDS National Brain Tumor Foundation National Cancer Institute National Hospice and Palliative Care Organization National Parkinson Foundation National Stroke Association Partnership for Caring: America's Voices for the Dying - A nonprofit organization that partners individuals and organization in a powerful collaboration to improve how people die in our society. Partnership for Caring operates a national crisis and informational hotline dealing with end-of-life issues and provides state-specific living wills and medical powers of attorney. Rosetta Life - Rosetta Life is an English-based, artist-led organization established to work in hospices to enable the terminally ill and the bereaved to document their lives in whatever artistic form is appropriate. The Susan G. Komen Breast Cancer Foundation Tragedy Assistance Program for Survivors, Inc. (TAPS) - TAPS is a national non-profit organization made up of, and providing services at no cost to, all those who have suffered the loss of a loved one in the Armed Forces. The heart of TAPS is its national military survivor peer support network called SurvivorLINK, which links together the families, friends, and coworkers of those who are grieving. TAPS also offers bereavement counseling referral, provides case worker assistance that carries the work of the casualty assistance officers into the future, hosts the nation's only annual National Military Survivor Seminar and Kids Camp, publishes a quarterly journal mailed at no charge to survivors and caregivers, maintains a comprehensive web site, and offers a toll-free crisis and information line available 24 hours a day. Volunteer Hospice Network - The Volunteer Hospice Network (VHN) is an affinity group of more than 150 volunteer organizations in the United States that provide a wide variety of free services to the terminally ill, their families, and those who are grieving. Our members include volunteer hospices, grief support programs, and many other volunteer groups that care for the dying whether or not they are called "hospice". WidowNet - an information and self-help resource for, and by, widows and widowers. William Wendt Center for Loss and Healing - The William Wendt Center for Loss (non-sectarian) specializes in support to people affected by all types of illness, loss, and grief. Services include counseling for adults and children; grief awareness programs for schools, work places, and religious institutions; education/training for mental health and health professionals in clinical applications of loss; and a volunteer program offering emotional and practical support for those living with illness, loss, or grief. New Resources A Graceful Passage: Notes on the Freedom to Live or Die by Arnold R. Beisser, MD (New York: Bantam Books, 1991). Beyond Grief by Carol Staudacher ( Oakland, CA: New Harbinger Pub., 1987). Borrowed Time: An AIDS Memoir by Paul Monette (New York: Avon, 1988). Companion Through the Darkness by Stephanie Ericsson ( New York: Harper Collins, 1993). Dying Well: The Prospect for Growth and the End of Life by Dr. Ira Byock (New York: Riverhead Books, 1997). Final Gifts: Understanding the Special Awareness, Needs, and Communication Of the Dying by Maggie Callahan & Patricia Kelley (New York: Bantam Books, 1993). Gone From My Sight: The Dying Experience by Barbara Karnes (Kansas: Barbara Karnes private printing, 1995). How Can I Help by Ram Dass (New York: Alfred A. Knopf, 1985). How to Survive the Loss of a Love by Colgrove, Bloomfield & McWilliams (Los Angeles: Prelude Press, 1991). "I Don't Know What to Say": How to Help and Support Someone Who is Dying by Robert Buckman, MD (New York: Vintage Books, 1989). I'm With You Now by Catherine M. Ray (New York: Bantom Books, 1997).Intimate Death: How the Dying Teach us to Live by Marie de Hennezel (New York: Vintage Books, 1997). Kitchen Table Wisdom by Rachel Naomi Remen, MD (New York: Riverhead Books, 1996). Lifetimes: The beautiful way to explain death to children by Bryan Mellonie and Robert Ingpen (New York: Bantam Books, 1983). Living Our Dying: A way to the sacred in everyday life by Joseph Sharp ( New York: Hyperion, 1996). Love Has no Fear: One couple's search for healing by Joan Peterson (VA: Merkaba Press, 1997). Man's Search for Meaning by Viktor E. Frankl ( New York: Simon & Schuster, Inc., 1984). Morrie: In His Own Words by Morrie Schwartz (New York: Walker & Co., 1996). One Death & Dying (and other books) by Elisabeth Kubler-Ross (New York: MacMillan, 1969). Stories and Reflections on Service by Ram Dass (New York: Knopf, 1991). The Dying Time: Practical Wisdom for the Dying & Their Caregivers by Joan Furman, RN and David McNabb (New York: Harmony Books, 1997). The Tibetan Book of Living and Dying by Sogyal Rinpoche (New York: Harper Collins, 1994). Who
Dies? An Investigation of Conscious Living and Conscious
Dying (and other Books) by Stephen Levine (New
York: Anchor Books, 1989).
American Hospital Association Circle of Life Award Community-State Partnerships to Improve End-of-Life Care Dying Well Education for Physicians on End-of-Life Care End-of-Life Nursing Education Consortium End-of-Life Physician Education Resource Center Growth House: Guide to Death, Dying, Grief, Bereavement and EOL Innovations in End-of-Life Care Last Acts On Our Own Terms: Moyers on Dying Partnership for Caring: America's Voices for the Dying Project on Death in America Promoting Excellence in End-of-Life Care Supportive Care of the Dying |
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